Your Information

Information that has been held previously by Coastal West Sussex, Crawley and Horsham and Mid Sussex CCGs is transferring to the new CCG (West Sussex CCG) on 1 April 2020.

The new CCG will become the new data controller. Any questions about the use of data (including patient data) by the new CCG should be directed to

Fair Processing Notice

How we use your information

The CCG is responsible for buying (also known as commissioning) health services from healthcare providers such as hospitals, for our local population. 

We also monitor the performance and quality of these services. In general we only use data that has been anonymised or pseudonymised for these purposes. 

There are certain circumstances in which the CCG will have access to identifiable data about patients, for example: 

  • when responding to concerns/complaints from patients about commissioned services
  • when handling Individual funding requests 
  • when handling NHS Continuing Healthcare applications
  • for the purposes of safeguarding adults or children

The CCG may also share de-identified statistical information with NHS and partner agencies for the purpose of improving local services, for example understanding how health conditions spread across our local area compared to other areas.

For the full detail on how we use and share information please review our Fair Processing Notice. This includes information about all our uses of personal data, how we keep information secure, details about Risk Stratification and Invoice Validation and information on how to opt-out of uses of your personal data. This document is updated at least annually - most recently in April 2019.

Exercising your Data Subject Rights

If you wish to access any information the CCG may hold about you, or make a request under any of the other data subject rights, please contact our Information Governance (IG) Manager using the following details:

Email: / Address: Information Governance Manager, Horsham and Mid Sussex CCG, Lower Ground Floor, Crawley Hospital, West Green Drive, Crawley, West Sussex, RH11 7DH

Requests are handled in line with our Individual Rights Requests (IRR) Procedures and you can use the Individual Rights Requests form to make your request if it’s helpful.

Your Records

The CCG is involved in supporting GP practices to make the best use of computer systems to speed up your care and improve your treatment.

Below you can find information on health records held online.

Summary Care Information

What is the Summary Care Record (SCR)?

A Summary Care Record is an electronic record which contains information about:

  • the medicines you take
  • allergies you suffer from
  • any bad reactions to medicines you have had

Having this information stored in one place makes it easier for healthcare staff to treat you in an emergency, or when your GP practice is closed.

What do I need to do to get a Summary Care Record?

Nothing. If you are registered with a GP, a record will be created for you.

What do I need to do if I don’t want a Summary Care Record?

If you don’t want a Summary Care Record, you need to opt out.  You can opt out by filling in an opt out form at your GP Surgery. Your GP surgery will mark your record so that a Summary Care Record is not created for you. This can be done at any time and you can change your mind.

Further Information

You can find more information on the NHS Digital website.

Help with Health Information Online

You can find lots of health information online, whether it is about eating healthily and looking after yourself, facts about health conditions, or information on health services in your area.

All our member GP practices now have a website.  You can find links to all practice websites on the Our Member Practices page.  At some GP Practices, you can also book an appointment or order a repeat prescription using the practice website.  

GP Practices are also working to make your records available to you online - you can find more information about this on the NHS Choices website

If you want to learn more about how to find health information online, you can find learning programmes to support you on the LearnMyWay website.

People who have used this learning have reported that they have found it easier to eat more healthily and find out about how to look after their health, and that they have spent less time at the doctors and saved money on travelling there, after using these programmes.